When It's Just Your Own Fault!
Sometimes in life, due mostly to your experience, you just know better. You may not want to deal with something, you may want to stick your head in the sand, you may just hope for the best, but really, you know better.
Yesterday was a very frustrating day for me, but I knew better and could have probably avoided the whole thing if I had been more assertive.
I went to MD Anderson for a check up with the Brain and Spine folks. Seems harmless enough, but to go to MD Anderson - which is curative medicine - I have to sign papers to quit Houston Hospice which is pallative care (keeps you comfortable). You typically cannot do both.
The problem is that it takes about 2.5 hours to re-enroll in hospice care. So I go off hospice for 1 day and then totally re-enroll (in this case on Monday).
I should have just skipped yesterday at MD Anderson. This is the part when I knew better. No tests = no information and I only had a doctor visit scheduled (no information). This entire thing could have been done with emails through my personal MDA website. I could have answered all their questions about how I am doing and he would have said exactly the same thing....
The result: Let's wait for a month or so, do the MRI's again, and then see if we want to do anything else.
Maybe I am just getting too tired to fight. I used to cancel appointments all the time or at least threaten to if we had no testing prior. We are all too busy to chit-chat!
I am scheduled for more testing in late July, but will be on hospice until then.
On a much brighter note, I have had a great week. I saw an old friend of mine from early elementary years (so by "old" I clearly meant we have known each other a long time, not that we are old). We played soccer together and looked so similar running around on the field people called us twins. We had a great time catching up.
Tuesday Nicole came and we had some good Bible discussions which is always fun.
Yesterday Thelma took me to MDA and then we went to the store for vitamins. Turns out I should have been taking vitamins the whole time I was doing radiation to help my nerves grow back. Vitamins normally nauseate me so I quit taking them but I didn't tell anyone so this is my fault. Back on vitamins!
Some new additions to our household are a lift chair and a wheel chair. I am grateful for both of them. The lift chair helps me get up and it has several settings so I can take a nap in it. The wheel chair is light and thin. We have had to move some furniture around, but at least I can get around without being scared I am going to fall. My balance is terrible.
Because I don't go upstairs anymore, I never have any idea what Connor's bedroom and bath look like. If you come to stay with us, be prepared to do some cleaning (unless one of the moms has been here recently!)
I guess that's it. We appreciate your prayers. We wish you all a great summer and if you have kids, we pray you get to spend some quality time with them.
Much love!
Kelli
Yesterday was a very frustrating day for me, but I knew better and could have probably avoided the whole thing if I had been more assertive.
I went to MD Anderson for a check up with the Brain and Spine folks. Seems harmless enough, but to go to MD Anderson - which is curative medicine - I have to sign papers to quit Houston Hospice which is pallative care (keeps you comfortable). You typically cannot do both.
The problem is that it takes about 2.5 hours to re-enroll in hospice care. So I go off hospice for 1 day and then totally re-enroll (in this case on Monday).
I should have just skipped yesterday at MD Anderson. This is the part when I knew better. No tests = no information and I only had a doctor visit scheduled (no information). This entire thing could have been done with emails through my personal MDA website. I could have answered all their questions about how I am doing and he would have said exactly the same thing....
The result: Let's wait for a month or so, do the MRI's again, and then see if we want to do anything else.
Maybe I am just getting too tired to fight. I used to cancel appointments all the time or at least threaten to if we had no testing prior. We are all too busy to chit-chat!
I am scheduled for more testing in late July, but will be on hospice until then.
On a much brighter note, I have had a great week. I saw an old friend of mine from early elementary years (so by "old" I clearly meant we have known each other a long time, not that we are old). We played soccer together and looked so similar running around on the field people called us twins. We had a great time catching up.
Tuesday Nicole came and we had some good Bible discussions which is always fun.
Yesterday Thelma took me to MDA and then we went to the store for vitamins. Turns out I should have been taking vitamins the whole time I was doing radiation to help my nerves grow back. Vitamins normally nauseate me so I quit taking them but I didn't tell anyone so this is my fault. Back on vitamins!
Some new additions to our household are a lift chair and a wheel chair. I am grateful for both of them. The lift chair helps me get up and it has several settings so I can take a nap in it. The wheel chair is light and thin. We have had to move some furniture around, but at least I can get around without being scared I am going to fall. My balance is terrible.
Because I don't go upstairs anymore, I never have any idea what Connor's bedroom and bath look like. If you come to stay with us, be prepared to do some cleaning (unless one of the moms has been here recently!)
I guess that's it. We appreciate your prayers. We wish you all a great summer and if you have kids, we pray you get to spend some quality time with them.
Much love!
Kelli
posted by Kelli @ 4:58 AM
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